Edema: A build up of fluid in the legs . So far Ashley doesn't have Edema. Fatigue : Ashley does complain of being sleepy more often then not but we attribute it more to her active dance schedule and not her liver disease. Ashley does require more sleep then most 10 year olds . Jaundice: Yellowing of the skin and eyes. Ashley is not jaundice but this is something we continue to watch as she has been severely jaundice in the past. Epistaxis : Profuse nose bleeds. Ashley has never had a nose bleed. Reddness of Palms: At Ashley's list visit to Shands Liver Clinic in August, it was noted that Ashley's palms are red. Spider Angiomas (Spider veins): Small red spots and tiny lines on the skin. Ashley does have a few spider veins on her face and on her stomach. Portal Hypertension: This is caused when scar tissue blocks the proper flow of blood from the intestines through the liver, leading to increased pressure in the veins. Ashley has had Portal Hypertension since her diagn...
Ashley has biliary atresia, a chronic life threatening liver disease. Her disease has no cure, and her only hope for a long life is a transplant. We are trying to raise money for her liver transplant and other medical needs. Because her disease is unpredictable, her medical needs are unpredictable. It is because of this and the fact that we are unable to get life insurance for Ashley that we ask for donations. If you feel it in your heart to donate to Ashley's fund, we will be grateful.