Love For Ashley

As Ashley gets older she becomes more aware of her limitations due to her liver disease. As she learns what having a liver disease means for her daily life and her future, she hates life more. Her words to me today as tears fell from her face was, "I hate my liver disease, I wish I didn't have it, It's not fair." "I want a liver transplant now." Her tears started after I reminded her that tomorrow she is scheduled to have an ultrasound and a full set of labs. Usually, this is not a problem and produces excitement from Ashley. But I suppose now at 9 1/2 years old, going to the hospital is not fun anymore. I suppose after 9 1/2 years of needles, ultrasounds, CT scans, MRI's, medications and restriction, one gets tired of the drama. All Ashley wants to do is spend the night over at her friend, Rachel's house. All Ashley wants to do is play with her friends without being interrupted with daily medications, and trips to the hospital. As I explai...

This journal is mostly about Ashley, about her struggles with liver disease and wait for a liver transplant. This journal was started mainly to keep family and friends who love Ashley informed on how she is doing but it was also started to help me cope with having a daughter with a life threatening illness. However, today, it's about none of of these things. It's not about Ashley, me, or how we as a family cope with her illness. Today, it's about other children like Ashley who need an extra prayer or two. If you look to the right of this website you will see a headline called "Liver Friends". Please take the time to visit some of these websites. But before you leave Love for Ashley let me briefly introduce you to those special children. Aiden is a sweet goodlooking blonde-haired boy who had biliary atresia. Aiden received a liver transplant when he was just a tiny baby. Although, Aiden's liver transplant was a success, he still struggles with life thr...