Prevacid - Ashley's Newest Medicine

Yesterday, I picked up Ashley's new prescription drug, Prevacid. Prevacid should help Ashley with her reflux, Gastroesophageal Reflux Disease. With the cost of this medication it better cure her of this disease. The medication with insurance will cost us $70 a month; that's $840 a year. People that don't have insurance, Prevacid would cost them about $380 a month. The cost of prescription drugs is ridiculous.

Prevacid is now just one of 5 medications that Ashley is taking everyday. She is also on a nebulizer (for her lungs), Atrovent (for her sinuses), Actigall (for her liver) and an antibiotic (because of her low white blood cell count and platelet count). One of these days I will sit down and add up our monthly prescription drug expenses. Of course, that monthly expense will not only include Ashley's 5 medicines but it will include my 3 prescriptions; two for high blood pressure and one for severe allergies and it will include Brad's prescription for his allergies. What would we do without insurance, I hope and pray that we never ever have to find out.

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Ashley's Story

“Although Ashley’s liver is failing, she isn’t sick enough to be placed on the liver transplant list. We were told that Ashley would need a new liver by the time she reaches puberty." Ashley was born at the end of July in 1998, but her story doesn’t start there;her story begins when she was just a little peanut in my womb. At 24 weeks gestation we learned we were having a girl, but our little girl had something wrong with her. Imagine sitting in the examining room, and the excitement of learning you are having a girl, then at the same time you hear the silence in the room when something is just not right with the baby. We were told that Ashley possibly had an ovarian cyst. It was normal and not to worry. But something told us it was more than just an ovarian cyst. As soon as Ashley was delivered she struggled to live. The umbilical cord was wrapped around her neck twice, and she was blue. Thankfully the doctor cut the cord immediately and although Ashley was still blue; she was b

Answers lead to more Questions

In great Ashley fashion, she did very well with her trip to the hospital and recovered well from the procedure. Right now, Ashley is off with her Grammie getting spoiled by shopping. With no one in the house but me and the pets, I am off to my own devices which usually means I have to much time to think, to research, to worry, to vent, to hope and to pray. Today Ashley had a broncioscope to find out why she has been coughing for six months. After getting up at 4:30 am and at the hospital at 6 am, the scope began at approximately 7:30 am. The procedure itself took less than 30 minutes. The outcome of the procedure left me with more questions than answers. We do know why Ashley is coughing, Ashley has a vocal cord dysfunction, enlarged adnenoids and tonsils. Finding out why Ashley is coughing is good news, however, we also learned that Ashley may have other issues involving her lungs. There was 60mL of fluid in her lungs. Some samples of her lungs were sent for a cell count, bacterial cu

All About Ashley - Dance, Liver, Life.

Ashley has been busy this year with dance. She is simply amazing and has grown so much as a dancer this year. I am very proud of her. Each year as Ashley continues to dance, it has become increasingly hard to pay for her love of dance. However, some how by the grace of God we are able to continue to support her talent and love. I mean really how can you possibly say no to this. and this... and of course this.... and this too.... Amazing isn't she? Remarkably or miraculously dance seems to be what is keeping Ashley so healthy. Her doctors are in firm belief that her dance is providing her with healing powers that they just don't have. Ashley's liver disease is stable after 13 years of fighting this beast called biliary atresia. Note: I said stable not cured. Her liver function appears to be normal...for now. The only issue we are dealing with is Ashley's platelet count is continuing to drop. At present time, her platelet count is

Love For Ashley

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