A Pleasant Surprise

Today in the mail, instead of receiving bills, we received a pleasant surprise. A few days ago I received an email from a mom at the dance studio asking for our mailing address. Her daughter, Lena, wanted to send Ashley a birthday card. We received that card today and it was one of the sweetest cards we have ever received. It was handmade by Lena and enclosed were three checks totaling $200 for Ashley's transplant fund with the American Liver Foundation.

Lena's birthday party was celebrated on the same day we had Ashley's "So You Think You Can Dance" party. Lena was invited to attend Ashley's party and was asked to be a judge but unfortunately she had a birthday of her own to celebrate. For Lena's birthday, she asked her friends to donate money to Ashley's transplant fund.

Lena thank you so much for thinking of Ashley on your special day. Thanks to the Hauser family, the McClain family and the Tucciarone family. Your generous donations are appreciated. God's blessings to all of you!

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Ashley's Story

“Although Ashley’s liver is failing, she isn’t sick enough to be placed on the liver transplant list. We were told that Ashley would need a new liver by the time she reaches puberty." Ashley was born at the end of July in 1998, but her story doesn’t start there;her story begins when she was just a little peanut in my womb. At 24 weeks gestation we learned we were having a girl, but our little girl had something wrong with her. Imagine sitting in the examining room, and the excitement of learning you are having a girl, then at the same time you hear the silence in the room when something is just not right with the baby. We were told that Ashley possibly had an ovarian cyst. It was normal and not to worry. But something told us it was more than just an ovarian cyst. As soon as Ashley was delivered she struggled to live. The umbilical cord was wrapped around her neck twice, and she was blue. Thankfully the doctor cut the cord immediately and although Ashley was still blue; she was b

Answers lead to more Questions

In great Ashley fashion, she did very well with her trip to the hospital and recovered well from the procedure. Right now, Ashley is off with her Grammie getting spoiled by shopping. With no one in the house but me and the pets, I am off to my own devices which usually means I have to much time to think, to research, to worry, to vent, to hope and to pray. Today Ashley had a broncioscope to find out why she has been coughing for six months. After getting up at 4:30 am and at the hospital at 6 am, the scope began at approximately 7:30 am. The procedure itself took less than 30 minutes. The outcome of the procedure left me with more questions than answers. We do know why Ashley is coughing, Ashley has a vocal cord dysfunction, enlarged adnenoids and tonsils. Finding out why Ashley is coughing is good news, however, we also learned that Ashley may have other issues involving her lungs. There was 60mL of fluid in her lungs. Some samples of her lungs were sent for a cell count, bacterial cu

All About Ashley - Dance, Liver, Life.

Ashley has been busy this year with dance. She is simply amazing and has grown so much as a dancer this year. I am very proud of her. Each year as Ashley continues to dance, it has become increasingly hard to pay for her love of dance. However, some how by the grace of God we are able to continue to support her talent and love. I mean really how can you possibly say no to this. and this... and of course this.... and this too.... Amazing isn't she? Remarkably or miraculously dance seems to be what is keeping Ashley so healthy. Her doctors are in firm belief that her dance is providing her with healing powers that they just don't have. Ashley's liver disease is stable after 13 years of fighting this beast called biliary atresia. Note: I said stable not cured. Her liver function appears to be normal...for now. The only issue we are dealing with is Ashley's platelet count is continuing to drop. At present time, her platelet count is

Love For Ashley

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