Our Thanksgiving

First, let me say that I am so very thankful for many things none of which are more important than my family and my friends. My world would not be the same without my husband who puts up with more of my mistakes then anyone should. I am thankful to Brad for his wisdom, his sense of humor and his love. I am thankful to Ashley for her strength and her love for life. But more importantly I am thankful for my faith, my God, who without Him I would be a lost soul in a life of chaos.

Our week celebrating Thanksgiving with family went well but of course never normal. Ashley was taken to a local walk-in health clinic on Monday because she was complaining of a sore throat. The doctor prescribed an antibiotic for a very mild case of strep throat. Despite Ashley's little setback, we had a lot of fun with family. Ashley and Brad enjoyed spending lots of time with all of their cousins; all 7 of them.

On Saturday, we had a football party and watched Alabama beat Auburn and Florida beat FSU. The SEC Championship game with Alabama and Florida will be an exciting game - GO GATORS. We got back home Sunday night to a pile of mail and a very happy kitty cat. Skylar has not left my side since we arrived home.

Happy to be home and sleeping in the comfort of my own bed.

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Ashley's Story

“Although Ashley’s liver is failing, she isn’t sick enough to be placed on the liver transplant list. We were told that Ashley would need a new liver by the time she reaches puberty." Ashley was born at the end of July in 1998, but her story doesn’t start there;her story begins when she was just a little peanut in my womb. At 24 weeks gestation we learned we were having a girl, but our little girl had something wrong with her. Imagine sitting in the examining room, and the excitement of learning you are having a girl, then at the same time you hear the silence in the room when something is just not right with the baby. We were told that Ashley possibly had an ovarian cyst. It was normal and not to worry. But something told us it was more than just an ovarian cyst. As soon as Ashley was delivered she struggled to live. The umbilical cord was wrapped around her neck twice, and she was blue. Thankfully the doctor cut the cord immediately and although Ashley was still blue; she was b

Answers lead to more Questions

In great Ashley fashion, she did very well with her trip to the hospital and recovered well from the procedure. Right now, Ashley is off with her Grammie getting spoiled by shopping. With no one in the house but me and the pets, I am off to my own devices which usually means I have to much time to think, to research, to worry, to vent, to hope and to pray. Today Ashley had a broncioscope to find out why she has been coughing for six months. After getting up at 4:30 am and at the hospital at 6 am, the scope began at approximately 7:30 am. The procedure itself took less than 30 minutes. The outcome of the procedure left me with more questions than answers. We do know why Ashley is coughing, Ashley has a vocal cord dysfunction, enlarged adnenoids and tonsils. Finding out why Ashley is coughing is good news, however, we also learned that Ashley may have other issues involving her lungs. There was 60mL of fluid in her lungs. Some samples of her lungs were sent for a cell count, bacterial cu

All About Ashley - Dance, Liver, Life.

Ashley has been busy this year with dance. She is simply amazing and has grown so much as a dancer this year. I am very proud of her. Each year as Ashley continues to dance, it has become increasingly hard to pay for her love of dance. However, some how by the grace of God we are able to continue to support her talent and love. I mean really how can you possibly say no to this. and this... and of course this.... and this too.... Amazing isn't she? Remarkably or miraculously dance seems to be what is keeping Ashley so healthy. Her doctors are in firm belief that her dance is providing her with healing powers that they just don't have. Ashley's liver disease is stable after 13 years of fighting this beast called biliary atresia. Note: I said stable not cured. Her liver function appears to be normal...for now. The only issue we are dealing with is Ashley's platelet count is continuing to drop. At present time, her platelet count is

Love For Ashley

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