Skip to main content

So Far So Good

It's day two since Ashley returned to school after being out of school for two weeks and so far so good. She went to her first dance class in two weeks last night and had the energy to make it through the hour class. Wednesday's classes will be a challenge since she will be dancing for 3 1/2 hours. She still isn't eating much but she is feeling better. The bleeding has appeared to stop and her stools look somewhat normal. Who would have thought that I would be obsessed with poop! Ahh, the life of being a "liver mom" as we so affectionally call ourselves.

Today I am going out to buy baking supplies, Ashley must bake for the annual 5th Grade Market Day at school. This is going to be interesting, anyone who knows me, knows that I don't bake; I burn not bake. But for Ashley I have to give it a try, if all else fails there is always our local bakery. Hmmm...what shall we bake...any ideas? Please help, I need simple recipes for cookies, brownies...whatever that kids will eat. If you have a recipe to share please leave the recipe in the comment section. Ashley will very much appreciate it, she doesn't trust me at all with this baking thing.

Thanks everyone!

Comments

Post a Comment

Popular posts from this blog

It's been a while. Did you know...

that Ashley was in the hospital  after Thanksgiving and before Christmas?  She had a bleed. She has varices.  Just a little reminder that she is not healthy and has a life threatening liver disease. that we lost our beloved beautiful puppy, Sarge, on January 2.  It was sudden, shocking, and sad.  We think he had leukemia based on his symptoms.  Not sure if we will ever get another dog.  Sarge was one of a kind and a perfect fit for our laid back, drama free family. that Ashley made the Principal's Honor Roll her 1st Semester of high school while taking all honors courses.  She is beautiful and smart. that Ashley is still dancing for her high school dance team minus a solo this year. She loves being part of the team but really misses competing in her favorite style of dance, lyrical/contemporary. that after a couple years of not having a dance studio to call home.  We think we may have finally found just the place.  Maybe som...
1 comment
Read more
Okay so I made you wait a couple years.  I promise I will try to get better at this.  Now to help  you catch up on what happened in 2018, 2019 and so far in 2020. Let's see...this might be a very short post at least for the years 2018 and 2019.   2018 In 2018, Brad graduated from the Univeristy of Alabama with a BS Degree in Economics and Philosphy in May. He is still dating his high school sweetheart, McKenzie, there is talk of marriage.  After graduation, Brad got a job with Reuters as part of their Graduate Leadership Program.  Then the division of Reuters that Brad worked for became Refinitiv. He lived in NYC for about six weeks for training and then lived in Chicago for about 9 months before they transferred him to Houston to work as a Customer Success Manager in Commodities and Energy. McKenzie also graduated with a BS in Pharmacy but continued with her graduate studies.  Ashley is a Junior in college and she is doing well academically and h...
Post a Comment
Read more

Ashley's Story

“Although Ashley’s liver is failing, she isn’t sick enough to be placed on the liver transplant list. We were told that Ashley would need a new liver by the time she reaches puberty." Ashley was born at the end of July in 1998, but her story doesn’t start there;her story begins when she was just a little peanut in my womb. At 24 weeks gestation we learned we were having a girl, but our little girl had something wrong with her. Imagine sitting in the examining room, and the excitement of learning you are having a girl, then at the same time you hear the silence in the room when something is just not right with the baby. We were told that Ashley possibly had an ovarian cyst. It was normal and not to worry. But something told us it was more than just an ovarian cyst. As soon as Ashley was delivered she struggled to live. The umbilical cord was wrapped around her neck twice, and she was blue. Thankfully the doctor cut the cord immediately and although Ashley was still blue; she was b...
7 comments
Read more