Skip to main content

For now the news is good

According to the radiologist that looked over Ashley's MRI slides "there are some changes in her liver." He didn't say what the changes are or if the news is good or bad. All he said was that Dr. A. would call us with the results next week. I am assumming that the changes are not dramatic because they allowed us to go home.

My guesses:

a) Her three liver cysts have all disappeared. That would be very good news!
b) Her three liver cysts have grown. That would not be good news because the potential for cancer would exist.
c) The three liver cysts now has friends (more cysts found). This would not be good either because it means she has more cirrhosis.

Or maybe I am way off base with all my guesses. The only thing I know for sure is Ashley's liver disease is a guessing game for all involved. She has never been a textbook case and the longer she lives with her original liver, the more guessing we find ourselves doing.

Ashley did get sick off the IV contrast. We went to TGI Friday's after her MRI something that has become a tradition when Ashley goes to Shands Hospital. (I need to buy stock in Friday's or get a job there because we eat there often). We always stop and have lunch or dinner at the Friday's on Archer Drive. (Ashley loves Friday's Spinach dip). Ashley had a burger but unfortunately couldn't keep it down. After our two hour drive home, we got home about 6 pm, she had dry Mini Wheats for dinner. So far so good, she seems to be holding that down.

For now the news is good.

Comments

Popular posts from this blog

Ashley's Story

“Although Ashley’s liver is failing, she isn’t sick enough to be placed on the liver transplant list. We were told that Ashley would need a new liver by the time she reaches puberty." Ashley was born at the end of July in 1998, but her story doesn’t start there;her story begins when she was just a little peanut in my womb. At 24 weeks gestation we learned we were having a girl, but our little girl had something wrong with her. Imagine sitting in the examining room, and the excitement of learning you are having a girl, then at the same time you hear the silence in the room when something is just not right with the baby. We were told that Ashley possibly had an ovarian cyst. It was normal and not to worry. But something told us it was more than just an ovarian cyst. As soon as Ashley was delivered she struggled to live. The umbilical cord was wrapped around her neck twice, and she was blue. Thankfully the doctor cut the cord immediately and although Ashley was still blue; she was b

Answers lead to more Questions

In great Ashley fashion, she did very well with her trip to the hospital and recovered well from the procedure. Right now, Ashley is off with her Grammie getting spoiled by shopping. With no one in the house but me and the pets, I am off to my own devices which usually means I have to much time to think, to research, to worry, to vent, to hope and to pray. Today Ashley had a broncioscope to find out why she has been coughing for six months. After getting up at 4:30 am and at the hospital at 6 am, the scope began at approximately 7:30 am. The procedure itself took less than 30 minutes. The outcome of the procedure left me with more questions than answers. We do know why Ashley is coughing, Ashley has a vocal cord dysfunction, enlarged adnenoids and tonsils. Finding out why Ashley is coughing is good news, however, we also learned that Ashley may have other issues involving her lungs. There was 60mL of fluid in her lungs. Some samples of her lungs were sent for a cell count, bacterial cu

All About Ashley - Dance, Liver, Life.

Ashley has been busy this year with dance.  She is simply amazing and has grown so much as a dancer this year. I am very proud of her.  Each year as Ashley continues to dance, it has become increasingly hard to pay for her love of dance.  However, some how by the grace of God we are able to continue to support her talent and love. I mean really how can you possibly say no to this. and this... and of course this.... and this too.... Amazing isn't she? Remarkably or miraculously dance seems to be what is keeping Ashley so healthy.  Her doctors are in firm belief that her dance is providing her with healing powers that they just don't have.  Ashley's liver disease is stable after 13 years of fighting this beast called biliary atresia.   Note: I said stable not cured.  Her liver function appears to be normal...for now.  The only issue we are dealing with is Ashley's platelet count is continuing to drop.  At present time, her platelet count is