Complete Strangers = Happy Dancer

Sometimes people completely amaze me, and I mean that in a good way not a bad way. Since Ashley was born and diagnosed with this rare ugly life threatening liver disease, we have been blessed with help beyond measure. Sometimes that help was financial, sometimes that help was a simple prayer, and other times that help was just a much needed hug. The people that amaze me are not family or friends, it is complete strangers.

As you know we stopped fundraising for Ashley's liver transplant fund sometime ago since she has been relatively stable...relatively speaking. Although we are not asking for help, we are still receiving it. Many of the people that ask to help don't want to donate to Ashley's liver transplant fund, they want to help making Ashley happy. And what makes Ashley happy? DANCE. Yes, we have a sponsor or sponsors that are currently helping fund Ashley's love for dance. It is amazing, it is emotional.

What is even more incredible is that the sponsor(s) are complete strangers. We have people offering to pay Ashley's dance tuition, help pay for costumes; whatever we need. I even had one want to pay for an entire year of dance (company) but I think they would have a heart attack if I told what it really cost. Have I accepted all the offers of help, no. But instead I have asked some to please help other children or families in need. Or to donate to Biliary Atresia Research in honor of Ashley. Some have done just that or something similar, others have ignored me and we received a donation via Pay Pal.

I am completely amazed by these Complete Strangers who want to make my dancer happy.

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Ashley's Story

“Although Ashley’s liver is failing, she isn’t sick enough to be placed on the liver transplant list. We were told that Ashley would need a new liver by the time she reaches puberty." Ashley was born at the end of July in 1998, but her story doesn’t start there;her story begins when she was just a little peanut in my womb. At 24 weeks gestation we learned we were having a girl, but our little girl had something wrong with her. Imagine sitting in the examining room, and the excitement of learning you are having a girl, then at the same time you hear the silence in the room when something is just not right with the baby. We were told that Ashley possibly had an ovarian cyst. It was normal and not to worry. But something told us it was more than just an ovarian cyst. As soon as Ashley was delivered she struggled to live. The umbilical cord was wrapped around her neck twice, and she was blue. Thankfully the doctor cut the cord immediately and although Ashley was still blue; she was b

Answers lead to more Questions

In great Ashley fashion, she did very well with her trip to the hospital and recovered well from the procedure. Right now, Ashley is off with her Grammie getting spoiled by shopping. With no one in the house but me and the pets, I am off to my own devices which usually means I have to much time to think, to research, to worry, to vent, to hope and to pray. Today Ashley had a broncioscope to find out why she has been coughing for six months. After getting up at 4:30 am and at the hospital at 6 am, the scope began at approximately 7:30 am. The procedure itself took less than 30 minutes. The outcome of the procedure left me with more questions than answers. We do know why Ashley is coughing, Ashley has a vocal cord dysfunction, enlarged adnenoids and tonsils. Finding out why Ashley is coughing is good news, however, we also learned that Ashley may have other issues involving her lungs. There was 60mL of fluid in her lungs. Some samples of her lungs were sent for a cell count, bacterial cu

All About Ashley - Dance, Liver, Life.

Ashley has been busy this year with dance. She is simply amazing and has grown so much as a dancer this year. I am very proud of her. Each year as Ashley continues to dance, it has become increasingly hard to pay for her love of dance. However, some how by the grace of God we are able to continue to support her talent and love. I mean really how can you possibly say no to this. and this... and of course this.... and this too.... Amazing isn't she? Remarkably or miraculously dance seems to be what is keeping Ashley so healthy. Her doctors are in firm belief that her dance is providing her with healing powers that they just don't have. Ashley's liver disease is stable after 13 years of fighting this beast called biliary atresia. Note: I said stable not cured. Her liver function appears to be normal...for now. The only issue we are dealing with is Ashley's platelet count is continuing to drop. At present time, her platelet count is

Love For Ashley

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