Skip to main content
We need to get better about updating this blog.  We really have no excuse except that we have been busy.  Busy doing normal things like going to school, homework, dancing, school and more homework and even more dancing.  I love when our life is normal, I love when we can forget (not really) that Ashley has a life threatening liver disease.  I love when we worry about other things unrelated to her liver disease. 

Ashley is at a point in her life where she hates school.  She loves some parts of it, her friends, language arts, her dance class, and lunch.  She has always had to struggle to keep her grades at A's and B's.  This year, her 8th grade year, we are seeing her grades drop especially in Algebra and Spanish.  Of course, those two class are high school classes so I guess we should be proud that she maintains a C average in those classes.  Because she asked and because we want what is best for her, we are working on getting tutors for those subjects.  Her Algebra teacher is wonderful and has been keeping Ashley in class at lunch and helping her.  I really think the reason Ashley has done so poor in math while in middle school is because her 6th and 7th grade math teachers were not that great. Her 7th grade teacher was the worst, and really truly should retire.  I believe in Ashley and I know she will get this, get Algebra and get Spanish.  Ashley is a lot like her mom, that's me.  She excels in the arts, but academics are a struggle.  However, she is doing much better than I ever did in school.  I am so PROUD of her.  I remember when the doctors told me that Ashley would be delayed mentally. She loves proving people wrong.

I would like promise that we will keep up with this blog but I am not good with promises.  But we will certainly try to be better updates.

Comments

Popular posts from this blog

Living through Dance

In just about six weeks Ashley will dance, not just any dance; she will be competing in a big regional dance competition by dancing her very first solo.  It's completely amazing, seeing Ashley dance, watching her live through dance.  When Ashley was born almost 11 1/2 years ago, I never ever thought, we never thought Ashley would live to dance much else do her first solo.  I can't believe I am crying as I type this.  I didn't think I would get emotional.  It's just amazing!  When I put her in dance at age 3, I did it because I knew I needed to stop sheltering her.  She needed to be around other children.  She needed to feel normal despite what is trying to zap the life out of her; despite her disease.  Honestly I never thought Ashley would be a good dancer or even a great dancer, I just knew dancing was safe; it was the one activity the doctors felt didn't put Ashley's life at risk.  Little did I know how much dancing did and still d...

ALF vs COTA - Loosing Sleep

What would keep a person up past 3:30 am? Decisions... As most of you know we have been using ALF (American Liver Foundation) for Ashley's Liver Transplant Fund. However, in the past year, we have found that ALF is not offering us what we need among a few other reasons which I will not blog about. When we opened Ashley's account with ALF we did so quickly after the death of my dad during Christmas 2006 and New Year 2007, we did not have time to research the best fundraising organizations. There are so many organizations out there from ALF , COTA , NTAF . But because of my dad's untimely death and because his dying wish was that friends, family, etc. donate to Ashley to help defray our medical costs, the first organization that came to mind was the American Liver Foundation. After all, Ashley does have a liver disease. Now, both my husband and I are wondering if we should have used COTA. We have also thought and inquired about opening up a local trust fund for Ashley. Howeve...

Ashley's Sick

One thing about having a child with a chronic illness is that normal illnesses just love to hang around longer. Ashley came home from school on Wednesday complaining of a headache, I took her temp and it was 101. She had no other symptoms just a fever, so of course we knew she needed to go to the doctor. However, I tried not to panic and decided to just watch her for 24 hours. On Thursday, her temperature just hovered around 99.5; Ashley's normal is around 97. She did fine most of Thursday but started complaining of a sore throat by late that evening. We woke up Friday with her planning to go back to school and me back to work but not before we went to the doctors just to make sure she didn't have strep throat. Dr. Lacy, Ashley's pediatrician, examined Ashley and didn't see anything in her throat but they did a strep test anyway; it was negative. Yesterday, Ashley's temp was normal all day, it ranged from 97.3 to 98.6. We thought maybe she was over her cold....