Hey guys! It's my first post! EVER! I am soo happy cause I wanted all of you guys to know that I am addicted (slightly HAHA) to the Shaytards/Shaycarl/Shayloss/Katilette/etc. So you guys need to go subscribe to their channels!
They're amazing, It's about everyday family life and they post a video everyday!
It relieves the stress, and I love it! Its so funny. So you should go watch one!
Anyways...
I just wanted to say hey! I love you guys sooooo much for donating stuff, before my mom closed the original website. :) And thanks you guys who are still here, watching over me and when I was a baby and sending me packages! I enjoyed them so much! THANKS! I loved them, like they were great.
Thanks you guys for sending me prayers and teddy bears ("Shout out to Matthew") (:
So guys I am going to post something everyday. Cause' my mom is getting Lazy, and she could pass this on to me if she wanted *Wink Wink*.
But you'd have to do the designing, WE NEED MORE PICTURES! Like a college in the background of the family. Right guys?!? Post below!!
But, yeah. I'm really excited. What do you guys think I should post about? Like how I'm feeling and how my life is. Then my mom can do like other stuff, that I don't post. Blahhh Blahhh Blahhh.
I don't know what to type! But comment below followers! And suggest ideas! Love ya!
Kisses,
Ashley Johansen
P.S. Shaytards fav. word is packages! AHH!
Monday, October 31, 2011
Wednesday, September 7, 2011
Complete Strangers = Happy Dancer
Sometimes people completely amaze me, and I mean that in a good way not a bad way. Since Ashley was born and diagnosed with this rare ugly life threatening liver disease, we have been blessed with help beyond measure. Sometimes that help was financial, sometimes that help was a simple prayer, and other times that help was just a much needed hug. The people that amaze me are not family or friends, it is complete strangers.
As you know we stopped fundraising for Ashley's liver transplant fund sometime ago since she has been relatively stable...relatively speaking. Although we are not asking for help, we are still receiving it. Many of the people that ask to help don't want to donate to Ashley's liver transplant fund, they want to help making Ashley happy. And what makes Ashley happy? DANCE. Yes, we have a sponsor or sponsors that are currently helping fund Ashley's love for dance. It is amazing, it is emotional.
What is even more incredible is that the sponsor(s) are complete strangers. We have people offering to pay Ashley's dance tuition, help pay for costumes; whatever we need. I even had one want to pay for an entire year of dance (company) but I think they would have a heart attack if I told what it really cost. Have I accepted all the offers of help, no. But instead I have asked some to please help other children or families in need. Or to donate to Biliary Atresia Research in honor of Ashley. Some have done just that or something similar, others have ignored me and we received a donation via Pay Pal.
I am completely amazed by these Complete Strangers who want to make my dancer happy.
As you know we stopped fundraising for Ashley's liver transplant fund sometime ago since she has been relatively stable...relatively speaking. Although we are not asking for help, we are still receiving it. Many of the people that ask to help don't want to donate to Ashley's liver transplant fund, they want to help making Ashley happy. And what makes Ashley happy? DANCE. Yes, we have a sponsor or sponsors that are currently helping fund Ashley's love for dance. It is amazing, it is emotional.
What is even more incredible is that the sponsor(s) are complete strangers. We have people offering to pay Ashley's dance tuition, help pay for costumes; whatever we need. I even had one want to pay for an entire year of dance (company) but I think they would have a heart attack if I told what it really cost. Have I accepted all the offers of help, no. But instead I have asked some to please help other children or families in need. Or to donate to Biliary Atresia Research in honor of Ashley. Some have done just that or something similar, others have ignored me and we received a donation via Pay Pal.
I am completely amazed by these Complete Strangers who want to make my dancer happy.
Tuesday, August 30, 2011
Our Normal Life
Sometimes it amazes me how normal things can be. Our daily life is much like everyone's, the kids go to school, Joey and I go to work, Brad plays baseball and Ashley dances. School started here a few weeks ago and Ashley is loving all of her classes and her teachers; she is the top dog, an 8th grader. We got so involved in the normalcy of our life that we I completely forgot that Ashley has a trip to the Shands Liver Clinic next Friday. To prepare for our two hour trip to Gainesville, Ashley needs to have blood work done this week, she needs to see her pediatrician for her 13 year old physical (I think I will schedule Brad's 15 year old physical as well). So as normal as our life seems with school, work, dance and baseball, it really isn't all that normal when compared to others.
We are excited about Ashley dancing/competing again this year. She will be doing two solos, a duet and 3 group numbers. I am looking forward to NOT having to fundraise to keep her dancing. I work the first UCF Knights Football game this Saturday. I am praying that we make some good money. The more money I make for Ashley that less I have to fundraise and the more time I have with my family. We are still looking at getting people to sponsor Ashley with dance competition. Ashley said if we can get 5 people to sponsor $100 that would be very helpful. (Ashley likes to dream, she dreams big). This may be Ashley's last year competiting so we want to make the best of it. We hope it's not but with her starting high school next year, she is going to be even more busy with academics not to mention a high school social life. Don't worry though, Ashley will always be dancing somewhere, it could be at her current studio, or at a workshop, a masters class or even her high school dance team. Dance is in Ashley's blood, her great grandma was a beautiful ballerina.
 |
| Ashley and some of her friends after a dance competiton. From left to right: Ashley, Kylie, Alexa, Delaney and Ari |
Wednesday, August 10, 2011
Birthday Card from Friendship, Wisconsin
Yesterday was Ashley's first day back at dance for the new dance season. Imagine our surprise when we were handed an envelope from the studio that did not contain a bill but a birthday card. This birthday card wasn't from the dance studio but from Randy and Sharon Miller. The mystery behind this card is that we do not know a Randy and Sharon Miller from Friendship, Wisconsin. If you are Randy and Sharon Miller, please send me a private email at laurie@cfl.rr.com. In the meantime, thank you for sending Ashley a birthday card. We really appreciate your thoughts of her special day.
Saturday, August 6, 2011
Drama to Bama
While traveling to Mobile, Alabama to see family we were in a pretty horrific four car crash. Thanks to my alertness, I saved us and our car from being totaled. It was such a bad accident the FHP could not determine fault, they only knew for sure that we were not at fault since we were rear ended. All three of the other cars had both rear and front damage. And all persons in those cars were taken by ambulance to the hospital. Needless to say it was more drama on our way to Bama then I ever care to experience again.
Saturday, July 30, 2011
Top 10 Liver Disease Blog Recognition
Ashley's blog received an award in 2010 and I was not even aware. Her blog was listed as one of the Top 10 Liver Disease Blogs by the Certified Nursing Assistants.
Here is our badge:
Subscribe to:
Posts (Atom)