My life has been absolutely crazy lately with the start of school, Ashley's after school dance practices and performances and now Brad's Fall baseball practice and games I so apologize for not giving my readers an update on the goings on with Ashley. For the most part Ashley is doing fantastically well despite her liver disease and in spite of her liver disease. I can't remember if I posted about her last visit to Shands so I apologize in advance if this is a repeat.
As you know Ashley's platelet count has been dropping, well then it will be no surprise to you to learn that her platelet count is still low and even lower than her last report. What will be surprising is that her liver functions seem to be elevating evermore slightly with each lab draw. We aren't sure why. Which is pretty funny. Of course we know why...the kid has liver disease. Really. Anyway. Ashley liver doctor was having knee surgery during our visit to Shands and when her lab results came in he was home recuperating. You know it is pretty serious when the doc calls you from home on his personal cell phone to express his concerns with the latest lab reports. Of course, I love denial so I am not worried. But we are working on a new medicine regimen then she will have blood work repeated in a month. If that doesn't work, we will increase the dosage on her meds. If that doesn't work...we are back to the drawing board, the guessing game...denial.
Here is praying that her liver functions return to normal in just one month's time.
Now onto something more positive...DANCE. Ashley loves dancing on her high school dance team. Although she misses competing and studio dance. Unfortunately, we have pretty much limited her dancing to her high school dance team because studio dance is so freaking expensive. We are still hoping, praying...that Ashley will be able to perform a solo for the competitions that her high school dance team attends but that requires money that we just don't have right now. Maybe just maybe that money will fall from the sky....grow on a tree in our back yard...maybe we will win the lotto or better yet, maybe it will show up in our mailbox. One can only dream.
I will post pictures of Ashley and her Dazzler friends that I have taken in the past few weeks. These are a great group of girls. Ashley is very privileged to be a part of this group.
Until next time...pray that Ashley's next lab results improve and that we have an uneventful rest of the year regarding Ashley's health. God Bless!
As you know Ashley's platelet count has been dropping, well then it will be no surprise to you to learn that her platelet count is still low and even lower than her last report. What will be surprising is that her liver functions seem to be elevating evermore slightly with each lab draw. We aren't sure why. Which is pretty funny. Of course we know why...the kid has liver disease. Really. Anyway. Ashley liver doctor was having knee surgery during our visit to Shands and when her lab results came in he was home recuperating. You know it is pretty serious when the doc calls you from home on his personal cell phone to express his concerns with the latest lab reports. Of course, I love denial so I am not worried. But we are working on a new medicine regimen then she will have blood work repeated in a month. If that doesn't work, we will increase the dosage on her meds. If that doesn't work...we are back to the drawing board, the guessing game...denial.
Here is praying that her liver functions return to normal in just one month's time.
Now onto something more positive...DANCE. Ashley loves dancing on her high school dance team. Although she misses competing and studio dance. Unfortunately, we have pretty much limited her dancing to her high school dance team because studio dance is so freaking expensive. We are still hoping, praying...that Ashley will be able to perform a solo for the competitions that her high school dance team attends but that requires money that we just don't have right now. Maybe just maybe that money will fall from the sky....grow on a tree in our back yard...maybe we will win the lotto or better yet, maybe it will show up in our mailbox. One can only dream.
I will post pictures of Ashley and her Dazzler friends that I have taken in the past few weeks. These are a great group of girls. Ashley is very privileged to be a part of this group.
Until next time...pray that Ashley's next lab results improve and that we have an uneventful rest of the year regarding Ashley's health. God Bless!
Comments