Looks like we are heading to Shands Liver Clinic on Thursday for a possible Upper Endoscopy and Colonoscopy. Will post more when I know more. I am still waiting on Ashley's lab results. Ashley is still bleeding and is in a little bit of pain. Ashley's doc thinks that the cause of the blood could be something very simple but because she has liver and spleen issues; i.e portal hypertension, we can't rule anything out. Pray that this is truly something simple!
In just about six weeks Ashley will dance, not just any dance; she will be competing in a big regional dance competition by dancing her very first solo. It's completely amazing, seeing Ashley dance, watching her live through dance. When Ashley was born almost 11 1/2 years ago, I never ever thought, we never thought Ashley would live to dance much else do her first solo. I can't believe I am crying as I type this. I didn't think I would get emotional. It's just amazing! When I put her in dance at age 3, I did it because I knew I needed to stop sheltering her. She needed to be around other children. She needed to feel normal despite what is trying to zap the life out of her; despite her disease. Honestly I never thought Ashley would be a good dancer or even a great dancer, I just knew dancing was safe; it was the one activity the doctors felt didn't put Ashley's life at risk. Little did I know how much dancing did and still d...
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