Ashley and the Cookbook

This is a guick update. Ashley will be admitted to Arnold Palmer Hospital in Orlando on Tuesday, December 11; she will have a broncioscope. We hope that the scope will tell us why Ashley has had a cough for 6 months. The scope is a relatively simple procedure on a normal child but on a child with liver disease and low platelets, the scope can be complicated and have complications. The procedure starts at 6:15 am, if all goes well Ashley should be home by Noon.

Cookbook sales are doing well, we have 50 cookbooks ordered so far. We hope to begin production on the cookbooks soon. However, if you ordered a cookbook, please keep in mind that with the volume of cookbooks ordered the shipment and delivery of your cookbook may be delayed. I can't wait to see the final product. As soon as I get a copy of the cookbook, I will scan the cover and share it with all of you here on Ashley's blog.

Thanks to all who continue reading Ashley's blog, please leave Ash a message, she keeps asking me why noone signs the blog.

Still tugging along, Laurie

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Living through Dance

In just about six weeks Ashley will dance, not just any dance; she will be competing in a big regional dance competition by dancing her very first solo. It's completely amazing, seeing Ashley dance, watching her live through dance. When Ashley was born almost 11 1/2 years ago, I never ever thought, we never thought Ashley would live to dance much else do her first solo. I can't believe I am crying as I type this. I didn't think I would get emotional. It's just amazing! When I put her in dance at age 3, I did it because I knew I needed to stop sheltering her. She needed to be around other children. She needed to feel normal despite what is trying to zap the life out of her; despite her disease. Honestly I never thought Ashley would be a good dancer or even a great dancer, I just knew dancing was safe; it was the one activity the doctors felt didn't put Ashley's life at risk. Little did I know how much dancing did and still d...

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Answers lead to more Questions

In great Ashley fashion, she did very well with her trip to the hospital and recovered well from the procedure. Right now, Ashley is off with her Grammie getting spoiled by shopping. With no one in the house but me and the pets, I am off to my own devices which usually means I have to much time to think, to research, to worry, to vent, to hope and to pray. Today Ashley had a broncioscope to find out why she has been coughing for six months. After getting up at 4:30 am and at the hospital at 6 am, the scope began at approximately 7:30 am. The procedure itself took less than 30 minutes. The outcome of the procedure left me with more questions than answers. We do know why Ashley is coughing, Ashley has a vocal cord dysfunction, enlarged adnenoids and tonsils. Finding out why Ashley is coughing is good news, however, we also learned that Ashley may have other issues involving her lungs. There was 60mL of fluid in her lungs. Some samples of her lungs were sent for a cell count, bacterial cu...

Love For Ashley

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