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We've had Enough

Christmas is in 5 days and WE are going home to Mobile, Alabama to spend this wonderful and difficult time of year together. We have had enough of doctors, hospitals, CT scans, scopes, blood work, etc. Nothing is going to happen to change Ashley's health in the next few days, nothing is going to happen that will give us a final diagnosis if we decide to spend a week with family in Mobile. We need a break!

The appointment with the new ENT was a waste of time in my opinion. He looked at her decided she sounded good, looked good..."yes she has swollen adenoids but I think the cough is more related to sinus infection." WHAT, are you kidding me, she doesn't have a stuffy nose or a runny nose. Oh and by the way he says, "Ashley's tonsils aren't swollen." The ENT wants Ashley to have a CT scan without contrast of her sinus cavity. Okay sure, we can do that...but it will not help! The ENT did say he would rather not perform adenoid/tonsil surgery on someone with a low platelet count. Ahh, now the real reason is out, doctors are scared to treat Ashley because she has a low platelet count and a liver disease. Now we know what is in store for us as Ashley's disease progresses. Guess I need to get ugly with these docs!

Can you tell I am frustrated! I hate not having answers but things could be worse after all Ashley is home and she appears like any other 9 1/2 year old. Sometimes I wish Ashley would just throw up blood or run a high fever so we are taken seriously. But I really don't wish that on her, I want her normal, I want her happy and I especially want her to live a long long life full of love and happiness!

The good news, I got my van back from the collision repair shop. I love my Toyota Sienna. It's not much, it's a CE; bottom of the line van but I love it. There are no bells and whistles but I whistled when I got it back today. Boy did it feel good to drive my own car! Only $5000 more dollars before my baby is truly mine...and not the banks!

Back to Ashley's health saga, I will be talking to Ashley's liver doctor and pulmonologist tomorrow about what happened today with the ENT. I will let them know that if they want any further testing done on at Ashley, it will have to be done tomorrow, December 21 or it will just have to wait until after January 1. Evidently, whatever is going on with Ashley is not life threatening although it could be life altering. Therefore, we are going to enjoy our life together during this wonderful Christmas season!

Jesus is the Reason for the Season.

Merry Christmas, Laurie
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Anonymous said…
Laurie

So much is happening for you guys so fast. I wish I could slow some thngs down. Sometimes you just have to take time for family even with medical issues to contend with. I hope you all have a very Merry Christmas

Karen - Jen & Jon's mom
December 22, 2007 at 9:08 AM
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