We are finally back home, even if it just for a day. Tomorrow Ashley and I leave for Jacksonville, Florida so that she can attend her 2nd dance competition. She is so excited and has been practicing both her jazz routines everyday. I don't know where she gets the energy because I am exhausted just watching her.
Ashley's Endoscope went well today. They found no varices, which is great considering she has portal hypertension, enlarged spleen and low platelets. The doctors biopsied her small intestine and her stomach to see if they can tell us why she has chronic diarreah. They also said that Ashley's stomach was odd, they aren't sure if it's because of the surgeries she has had or if it's just her anatomy changing because of her spleen. At any rate, they found it interesting and want to check that further. This is the first time since Ashley's birth that I have heard that Ashley's anatomy is different.
The doctors want Ashley to have an upper GI Study that includes the small bowel to evaluate for abnormalities. So when I get back from running the road, I will schedule the study. And there is a possibility of a pH probe to study her reflux issues. The doctors today think that maybe Ashley's odd stomach is causing her reflux issues and diarreah. And I thought we were going to have a break from hospitals and doctors.
That's it from O'town. Tomorrow we are dancing and not thinking of these hospitals, tests, disease or needles - out of sight out of mind.
Ashley's Endoscope went well today. They found no varices, which is great considering she has portal hypertension, enlarged spleen and low platelets. The doctors biopsied her small intestine and her stomach to see if they can tell us why she has chronic diarreah. They also said that Ashley's stomach was odd, they aren't sure if it's because of the surgeries she has had or if it's just her anatomy changing because of her spleen. At any rate, they found it interesting and want to check that further. This is the first time since Ashley's birth that I have heard that Ashley's anatomy is different.
The doctors want Ashley to have an upper GI Study that includes the small bowel to evaluate for abnormalities. So when I get back from running the road, I will schedule the study. And there is a possibility of a pH probe to study her reflux issues. The doctors today think that maybe Ashley's odd stomach is causing her reflux issues and diarreah. And I thought we were going to have a break from hospitals and doctors.
That's it from O'town. Tomorrow we are dancing and not thinking of these hospitals, tests, disease or needles - out of sight out of mind.
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