Skip to main content

BA Blog Roll Call

If you have BA (biliary atresia) or if you care for someone with BA and you blog about your journey with biliary atresia please leave a comment under the post with your blog address as well as a brief description of who you are and the title of your blog. You don't have to include the description of your blog if you don't want to.

I'll put all of the blogs together in one post and I will also list the blogs in the sidebar of the Love for Ashley blog. My goal is for your blogs to be used as resource for those looking to connect with other people dealing with biliary atresia and want learn more about the disease and liver transplantation/organ donation.

Please, ONLY leave a commnet if the blog is your blog, don't post somebody else's blog address.
Labels:

Comments

Anonymous said…
I do not have a blog, but I do have a daughter with BA. Amber Sue Romenesko had her Kasi in 1986 and has been extremely well ever since. She is currently 22 and lives with her boyfriend as sh continues her education to become a math teacher.

Jeffery James Romenesko
2612 S. Gladys Ave.
Appleton, WI 54915
June 21, 2008 at 9:49 AM
Post a Comment

Popular posts from this blog

It's been a while. Did you know...

that Ashley was in the hospital  after Thanksgiving and before Christmas?  She had a bleed. She has varices.  Just a little reminder that she is not healthy and has a life threatening liver disease. that we lost our beloved beautiful puppy, Sarge, on January 2.  It was sudden, shocking, and sad.  We think he had leukemia based on his symptoms.  Not sure if we will ever get another dog.  Sarge was one of a kind and a perfect fit for our laid back, drama free family. that Ashley made the Principal's Honor Roll her 1st Semester of high school while taking all honors courses.  She is beautiful and smart. that Ashley is still dancing for her high school dance team minus a solo this year. She loves being part of the team but really misses competing in her favorite style of dance, lyrical/contemporary. that after a couple years of not having a dance studio to call home.  We think we may have finally found just the place.  Maybe som...
1 comment
Read more

Ashley's Story

“Although Ashley’s liver is failing, she isn’t sick enough to be placed on the liver transplant list. We were told that Ashley would need a new liver by the time she reaches puberty." Ashley was born at the end of July in 1998, but her story doesn’t start there;her story begins when she was just a little peanut in my womb. At 24 weeks gestation we learned we were having a girl, but our little girl had something wrong with her. Imagine sitting in the examining room, and the excitement of learning you are having a girl, then at the same time you hear the silence in the room when something is just not right with the baby. We were told that Ashley possibly had an ovarian cyst. It was normal and not to worry. But something told us it was more than just an ovarian cyst. As soon as Ashley was delivered she struggled to live. The umbilical cord was wrapped around her neck twice, and she was blue. Thankfully the doctor cut the cord immediately and although Ashley was still blue; she was b...
7 comments
Read more
Okay so I made you wait a couple years.  I promise I will try to get better at this.  Now to help  you catch up on what happened in 2018, 2019 and so far in 2020. Let's see...this might be a very short post at least for the years 2018 and 2019.   2018 In 2018, Brad graduated from the Univeristy of Alabama with a BS Degree in Economics and Philosphy in May. He is still dating his high school sweetheart, McKenzie, there is talk of marriage.  After graduation, Brad got a job with Reuters as part of their Graduate Leadership Program.  Then the division of Reuters that Brad worked for became Refinitiv. He lived in NYC for about six weeks for training and then lived in Chicago for about 9 months before they transferred him to Houston to work as a Customer Success Manager in Commodities and Energy. McKenzie also graduated with a BS in Pharmacy but continued with her graduate studies.  Ashley is a Junior in college and she is doing well academically and h...
Post a Comment
Read more