Skip to main content

It's Ashley HERE!

Hey guys! It's my first post! EVER! I am soo happy cause I wanted all of you guys to know that I am addicted (slightly HAHA) to the Shaytards/Shaycarl/Shayloss/Katilette/etc. So you guys need to go subscribe to their channels!

They're amazing, It's about everyday family life and they post a video everyday!
It relieves the stress, and I love it! Its so funny. So you should go watch one!

Anyways...

I just wanted to say hey! I love you guys sooooo much for donating stuff, before my mom closed the original website. :) And thanks you guys who are still here, watching over me and when I was a baby and sending me packages! I enjoyed them so much! THANKS! I loved them, like they were great.

Thanks you guys for sending me prayers and teddy bears ("Shout out to Matthew") (:

So guys I am going to post something everyday. Cause' my mom is getting Lazy, and she could pass this on to me if she wanted *Wink Wink*.

But you'd have to do the designing, WE NEED MORE PICTURES! Like a college in the background of the family. Right guys?!? Post below!!

But, yeah. I'm really excited. What do you guys think I should post about? Like how I'm feeling and how my life is. Then my mom can do like other stuff, that I don't post. Blahhh Blahhh Blahhh.

I don't know what to type! But comment below followers! And suggest ideas! Love ya!
Kisses,
Ashley Johansen

P.S. Shaytards fav. word is packages! AHH!

Comments

M. Hoffman said…
Ashley, This is so cool and so personal to see a post from you. I am so glad to read this post. I always am praying for you everyday so you stay well.

What you can post is
1. How well you are doing in school.
2. Talk about your dance class. How long you are dancing. How many hours you practice a day or in a week.
3. What are your plans when you graduate from school.
4. Let people know how you help other people and make their life better.
5. Pictures are good too.
6. Also anything else you think about and would like to post would be fine with me.

Ashley you are so special to many people. You have changed many adult's and children's life for the better and most of these people you may not even know.
We all love you Ashley.
Laurie Johansen said…
Thanks Matthew! You had great Ideas! Thanks for everything! <3

Ill try to get active starting monday!

-Ashley Johansen
Anonymous said…
hi my name is emilia im from mexico and im 12 too! and i have biliary atresia too ..... i like to talk it about it with you if its possible. we have so much in common! .. like i love pets ( but i cant have it, the doctor dont let me) i like too dance to and use a protector in the liver foor the physical education class .. i play soccer and i go to the texas childrens hospital in houston tx. to check-up. i like to talk or chat wiht you some day but who? this is mi e-mail : emiglz@hotmail.com

Popular posts from this blog

Ashley's Story

“Although Ashley’s liver is failing, she isn’t sick enough to be placed on the liver transplant list. We were told that Ashley would need a new liver by the time she reaches puberty." Ashley was born at the end of July in 1998, but her story doesn’t start there;her story begins when she was just a little peanut in my womb. At 24 weeks gestation we learned we were having a girl, but our little girl had something wrong with her. Imagine sitting in the examining room, and the excitement of learning you are having a girl, then at the same time you hear the silence in the room when something is just not right with the baby. We were told that Ashley possibly had an ovarian cyst. It was normal and not to worry. But something told us it was more than just an ovarian cyst. As soon as Ashley was delivered she struggled to live. The umbilical cord was wrapped around her neck twice, and she was blue. Thankfully the doctor cut the cord immediately and although Ashley was still blue; she was b

Answers lead to more Questions

In great Ashley fashion, she did very well with her trip to the hospital and recovered well from the procedure. Right now, Ashley is off with her Grammie getting spoiled by shopping. With no one in the house but me and the pets, I am off to my own devices which usually means I have to much time to think, to research, to worry, to vent, to hope and to pray. Today Ashley had a broncioscope to find out why she has been coughing for six months. After getting up at 4:30 am and at the hospital at 6 am, the scope began at approximately 7:30 am. The procedure itself took less than 30 minutes. The outcome of the procedure left me with more questions than answers. We do know why Ashley is coughing, Ashley has a vocal cord dysfunction, enlarged adnenoids and tonsils. Finding out why Ashley is coughing is good news, however, we also learned that Ashley may have other issues involving her lungs. There was 60mL of fluid in her lungs. Some samples of her lungs were sent for a cell count, bacterial cu

It's been a while. Did you know...

that Ashley was in the hospital  after Thanksgiving and before Christmas?  She had a bleed. She has varices.  Just a little reminder that she is not healthy and has a life threatening liver disease. that we lost our beloved beautiful puppy, Sarge, on January 2.  It was sudden, shocking, and sad.  We think he had leukemia based on his symptoms.  Not sure if we will ever get another dog.  Sarge was one of a kind and a perfect fit for our laid back, drama free family. that Ashley made the Principal's Honor Roll her 1st Semester of high school while taking all honors courses.  She is beautiful and smart. that Ashley is still dancing for her high school dance team minus a solo this year. She loves being part of the team but really misses competing in her favorite style of dance, lyrical/contemporary. that after a couple years of not having a dance studio to call home.  We think we may have finally found just the place.  Maybe someday Ashley will compete on a stage again and not