Skip to main content

It's Ashley HERE!

Hey guys! It's my first post! EVER! I am soo happy cause I wanted all of you guys to know that I am addicted (slightly HAHA) to the Shaytards/Shaycarl/Shayloss/Katilette/etc. So you guys need to go subscribe to their channels!

They're amazing, It's about everyday family life and they post a video everyday!
It relieves the stress, and I love it! Its so funny. So you should go watch one!

Anyways...

I just wanted to say hey! I love you guys sooooo much for donating stuff, before my mom closed the original website. :) And thanks you guys who are still here, watching over me and when I was a baby and sending me packages! I enjoyed them so much! THANKS! I loved them, like they were great.

Thanks you guys for sending me prayers and teddy bears ("Shout out to Matthew") (:

So guys I am going to post something everyday. Cause' my mom is getting Lazy, and she could pass this on to me if she wanted *Wink Wink*.

But you'd have to do the designing, WE NEED MORE PICTURES! Like a college in the background of the family. Right guys?!? Post below!!

But, yeah. I'm really excited. What do you guys think I should post about? Like how I'm feeling and how my life is. Then my mom can do like other stuff, that I don't post. Blahhh Blahhh Blahhh.

I don't know what to type! But comment below followers! And suggest ideas! Love ya!
Kisses,
Ashley Johansen

P.S. Shaytards fav. word is packages! AHH!

Comments

M. Hoffman said…
Ashley, This is so cool and so personal to see a post from you. I am so glad to read this post. I always am praying for you everyday so you stay well.

What you can post is
1. How well you are doing in school.
2. Talk about your dance class. How long you are dancing. How many hours you practice a day or in a week.
3. What are your plans when you graduate from school.
4. Let people know how you help other people and make their life better.
5. Pictures are good too.
6. Also anything else you think about and would like to post would be fine with me.

Ashley you are so special to many people. You have changed many adult's and children's life for the better and most of these people you may not even know.
We all love you Ashley.
November 1, 2011 at 11:08 AM
Laurie Johansen said…
Thanks Matthew! You had great Ideas! Thanks for everything! <3

Ill try to get active starting monday!

-Ashley Johansen
November 2, 2011 at 8:35 PM
Anonymous said…
hi my name is emilia im from mexico and im 12 too! and i have biliary atresia too ..... i like to talk it about it with you if its possible. we have so much in common! .. like i love pets ( but i cant have it, the doctor dont let me) i like too dance to and use a protector in the liver foor the physical education class .. i play soccer and i go to the texas childrens hospital in houston tx. to check-up. i like to talk or chat wiht you some day but who? this is mi e-mail : emiglz@hotmail.com
December 29, 2011 at 9:53 PM
Post a Comment

Popular posts from this blog

ALF vs COTA - Loosing Sleep

What would keep a person up past 3:30 am? Decisions... As most of you know we have been using ALF (American Liver Foundation) for Ashley's Liver Transplant Fund. However, in the past year, we have found that ALF is not offering us what we need among a few other reasons which I will not blog about. When we opened Ashley's account with ALF we did so quickly after the death of my dad during Christmas 2006 and New Year 2007, we did not have time to research the best fundraising organizations. There are so many organizations out there from ALF , COTA , NTAF . But because of my dad's untimely death and because his dying wish was that friends, family, etc. donate to Ashley to help defray our medical costs, the first organization that came to mind was the American Liver Foundation. After all, Ashley does have a liver disease. Now, both my husband and I are wondering if we should have used COTA. We have also thought and inquired about opening up a local trust fund for Ashley. Howeve...
1 comment
Read more

Living through Dance

In just about six weeks Ashley will dance, not just any dance; she will be competing in a big regional dance competition by dancing her very first solo.  It's completely amazing, seeing Ashley dance, watching her live through dance.  When Ashley was born almost 11 1/2 years ago, I never ever thought, we never thought Ashley would live to dance much else do her first solo.  I can't believe I am crying as I type this.  I didn't think I would get emotional.  It's just amazing!  When I put her in dance at age 3, I did it because I knew I needed to stop sheltering her.  She needed to be around other children.  She needed to feel normal despite what is trying to zap the life out of her; despite her disease.  Honestly I never thought Ashley would be a good dancer or even a great dancer, I just knew dancing was safe; it was the one activity the doctors felt didn't put Ashley's life at risk.  Little did I know how much dancing did and still d...
1 comment
Read more

It's been a while. Did you know...

that Ashley was in the hospital  after Thanksgiving and before Christmas?  She had a bleed. She has varices.  Just a little reminder that she is not healthy and has a life threatening liver disease. that we lost our beloved beautiful puppy, Sarge, on January 2.  It was sudden, shocking, and sad.  We think he had leukemia based on his symptoms.  Not sure if we will ever get another dog.  Sarge was one of a kind and a perfect fit for our laid back, drama free family. that Ashley made the Principal's Honor Roll her 1st Semester of high school while taking all honors courses.  She is beautiful and smart. that Ashley is still dancing for her high school dance team minus a solo this year. She loves being part of the team but really misses competing in her favorite style of dance, lyrical/contemporary. that after a couple years of not having a dance studio to call home.  We think we may have finally found just the place.  Maybe som...
1 comment
Read more