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We need to get better about updating this blog.  We really have no excuse except that we have been busy.  Busy doing normal things like going to school, homework, dancing, school and more homework and even more dancing.  I love when our life is normal, I love when we can forget (not really) that Ashley has a life threatening liver disease.  I love when we worry about other things unrelated to her liver disease. 

Ashley is at a point in her life where she hates school.  She loves some parts of it, her friends, language arts, her dance class, and lunch.  She has always had to struggle to keep her grades at A's and B's.  This year, her 8th grade year, we are seeing her grades drop especially in Algebra and Spanish.  Of course, those two class are high school classes so I guess we should be proud that she maintains a C average in those classes.  Because she asked and because we want what is best for her, we are working on getting tutors for those subjects.  Her Algebra teacher is wonderful and has been keeping Ashley in class at lunch and helping her.  I really think the reason Ashley has done so poor in math while in middle school is because her 6th and 7th grade math teachers were not that great. Her 7th grade teacher was the worst, and really truly should retire.  I believe in Ashley and I know she will get this, get Algebra and get Spanish.  Ashley is a lot like her mom, that's me.  She excels in the arts, but academics are a struggle.  However, she is doing much better than I ever did in school.  I am so PROUD of her.  I remember when the doctors told me that Ashley would be delayed mentally. She loves proving people wrong.

I would like promise that we will keep up with this blog but I am not good with promises.  But we will certainly try to be better updates.

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Ashley's Story

“Although Ashley’s liver is failing, she isn’t sick enough to be placed on the liver transplant list. We were told that Ashley would need a new liver by the time she reaches puberty." Ashley was born at the end of July in 1998, but her story doesn’t start there;her story begins when she was just a little peanut in my womb. At 24 weeks gestation we learned we were having a girl, but our little girl had something wrong with her. Imagine sitting in the examining room, and the excitement of learning you are having a girl, then at the same time you hear the silence in the room when something is just not right with the baby. We were told that Ashley possibly had an ovarian cyst. It was normal and not to worry. But something told us it was more than just an ovarian cyst. As soon as Ashley was delivered she struggled to live. The umbilical cord was wrapped around her neck twice, and she was blue. Thankfully the doctor cut the cord immediately and although Ashley was still blue; she was b

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It's been a while. Did you know...

that Ashley was in the hospital  after Thanksgiving and before Christmas?  She had a bleed. She has varices.  Just a little reminder that she is not healthy and has a life threatening liver disease. that we lost our beloved beautiful puppy, Sarge, on January 2.  It was sudden, shocking, and sad.  We think he had leukemia based on his symptoms.  Not sure if we will ever get another dog.  Sarge was one of a kind and a perfect fit for our laid back, drama free family. that Ashley made the Principal's Honor Roll her 1st Semester of high school while taking all honors courses.  She is beautiful and smart. that Ashley is still dancing for her high school dance team minus a solo this year. She loves being part of the team but really misses competing in her favorite style of dance, lyrical/contemporary. that after a couple years of not having a dance studio to call home.  We think we may have finally found just the place.  Maybe someday Ashley will compete on a stage again and not