Skip to main content

Pay it Forward

A friend of mine from our Liver Disease Support Group has been with me every step of the way with Ashley's illness. Peggy and I have known each other for what seems like decades since we met online, last year in California we met for the first time. Peg's daughter, Fiona, has the same liver disease as Ashley. Fiona is 19 years old.

Fiona was my hope for Ashley when Ashley was first diagnosed. Fiona was doing well living with bilary atresia. Fiona's mother was also told that Fiona wouldn't live past her first birthday but she did. However, today the effects of biliary atresia are slowly sucking the life out of Fiona. Fiona's heart, lungs and just about everything else in her body is experiencing the complications of living for years with liver disease.

Today, Fiona found out that if she has pulmonary hypertension that she would not qualify for a liver transplant. Pulmonary hypertension can be caused by end stage liver disease. Basically today, Fiona and Peggy were told that Fiona is either going to die of liver disease or heart failure.

Please visit Fiona's Blog, In My Shoes, and leave her a message of hope. Please say a prayer for her healing. Please pray that the Lord give both Fiona and Peggy strength to get through this time.

I am asking you to do this because Peggy has helped me cope with and manage Ashley's heath. I am asking you to do this because I want to Pay it Forward. If anyone needs prayers right now, it's Fiona. Please pray...Please visit her blog and leave a message of encouragement.

Thank you
Labels:

Comments

Post a Comment

Popular posts from this blog

Ashley's Story

“Although Ashley’s liver is failing, she isn’t sick enough to be placed on the liver transplant list. We were told that Ashley would need a new liver by the time she reaches puberty." Ashley was born at the end of July in 1998, but her story doesn’t start there;her story begins when she was just a little peanut in my womb. At 24 weeks gestation we learned we were having a girl, but our little girl had something wrong with her. Imagine sitting in the examining room, and the excitement of learning you are having a girl, then at the same time you hear the silence in the room when something is just not right with the baby. We were told that Ashley possibly had an ovarian cyst. It was normal and not to worry. But something told us it was more than just an ovarian cyst. As soon as Ashley was delivered she struggled to live. The umbilical cord was wrapped around her neck twice, and she was blue. Thankfully the doctor cut the cord immediately and although Ashley was still blue; she was b
7 comments
Read more

Answers lead to more Questions

In great Ashley fashion, she did very well with her trip to the hospital and recovered well from the procedure. Right now, Ashley is off with her Grammie getting spoiled by shopping. With no one in the house but me and the pets, I am off to my own devices which usually means I have to much time to think, to research, to worry, to vent, to hope and to pray. Today Ashley had a broncioscope to find out why she has been coughing for six months. After getting up at 4:30 am and at the hospital at 6 am, the scope began at approximately 7:30 am. The procedure itself took less than 30 minutes. The outcome of the procedure left me with more questions than answers. We do know why Ashley is coughing, Ashley has a vocal cord dysfunction, enlarged adnenoids and tonsils. Finding out why Ashley is coughing is good news, however, we also learned that Ashley may have other issues involving her lungs. There was 60mL of fluid in her lungs. Some samples of her lungs were sent for a cell count, bacterial cu
3 comments
Read more

It's been a while. Did you know...

that Ashley was in the hospital  after Thanksgiving and before Christmas?  She had a bleed. She has varices.  Just a little reminder that she is not healthy and has a life threatening liver disease. that we lost our beloved beautiful puppy, Sarge, on January 2.  It was sudden, shocking, and sad.  We think he had leukemia based on his symptoms.  Not sure if we will ever get another dog.  Sarge was one of a kind and a perfect fit for our laid back, drama free family. that Ashley made the Principal's Honor Roll her 1st Semester of high school while taking all honors courses.  She is beautiful and smart. that Ashley is still dancing for her high school dance team minus a solo this year. She loves being part of the team but really misses competing in her favorite style of dance, lyrical/contemporary. that after a couple years of not having a dance studio to call home.  We think we may have finally found just the place.  Maybe someday Ashley will compete on a stage again and not
1 comment
Read more